October 3, 2012
Tweetchat Archive
- October 3, 2012
- September 5, 2012
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- October 27, 2010
- October 20, 2010
- October 13, 2010
- October 6, 2010
- September 29, 2010
- September 22, 2010
- September 15, 2010
- September 8, 2010
- September 1, 2010
- August 25, 2010
- August 18, 2010
- August 11, 2010
- August 4, 2010
- July 28, 2010
- July 21, 2010
- July 14, 2010
- July 7, 2010
- June 30, 2010
- June 23, 2010
- June 16, 2010
- June 9, 2010
- June 2, 2010
- May 26, 2010
- May 19, 2010
- May 12, 2010
- May 5, 2010
- April 28, 2010
- April 21, 2010
- April 14, 2010
EileenOBrien:
Welcome to the #socpharm chat with @JoPeKim from Shire as moderator. Please say hi!
EileenOBrien:
Please note that all tweets will be considered your personal views and not reflective of your employer or clients. #SocPharm
JoPeKim:
hi everyone! welcome to the #socpharm tweet chat
crshorizon:
Hi All - Great to be here and looking forward to the conversation. Chuck #socpharm
friedah03:
Hi all, very excited to join #socpharm chat with @JoPeKim
JoPeKim:
Let's start by talking about research and how patient leaders like @fingohead @sixuntilme and @natasha_tracy might play a role #socpharm
friedah03:
@JoPeKim, @EileenOBrien What topics are we looking forward to on tonite's #socpharm chat? # #clinicaltrials #hcsm #epharma
@JoPeKim:
Let's start by talking abt clinical research & how pt leaders like @fingohead @sixuntilme @natasha_tracy might play role #SocPharm
EileenOBrien:
Is anyone else having delays and issues with tweets not showing up in tweet stream? #SocPharm
JoPeKim:
yes, it's slow tonight. maybe because of debates? #socpharm
EileenOBrien:
With increase in social media patient leaders are taking big role in #clinicaltrial & research. #SocPharm
EileenOBrien:
I bet u r right! RT @JoPeKim: yes, it's slow tonight. maybe because of debates? #socpharm
vivekaliraman:
Clinical Trials or Clinical/Medical "Research"? MT @JoPeKim: how patient leaders might play a role #socpharm"
EileenOBrien:
In #raredisease patient leaders are essential through entire process - from research through commercialization. #SocPharm
JoPeKim:
allowing patient leaders to curate and comment on research opportunities in a formal way could be invaluable #socpharm
crshorizon:
@JoPeKim Info/education from KOL/fellow patient especially valuable with uncertainty of a new therapy #socpharm
EileenOBrien:
@JoPeKim interesting idea, how could something like that work? #SocPharm
vivekaliraman:
This can get political MT @JoPeKim: allowing patient leaders to curate & comment on research opportunities could be invaluable #socpharm"
JoPeKim:
@EileenOBrien Patient leaders could perform a formal review of a protocol just as an ethics committee does #socpharm
friedah03:
@JoPeKim That sounds so sensible. What are the barriers you foresee? #socpharm
vivekaliraman:
How might patient leaders know about say JAK3 inhibitor role in Rheumatoid Arthritis? @JoPeKim @EileenOBrien perform formal rev #socpharm
friedah03:
@JoPeKim We are seeing a lot of patient leaders in #clinicaltrials and research for #raredisease #socpharm
friedah03:
A good example is @katherinekleon who kickstarted a study with Mayo Clinic for her #raredisease SCAD http://t.co/8ulMc0op #socpharm
EileenOBrien:
@JoPeKim who would decide which pt leaders would be qualified to do this? And per @vivekaliraman: how to keep it like Switzerland? #SocPharm
DiabetesSocMed:
RT @RotoTok: Program helps get diabetes under control | Richmond Times-Dispatch - http://t.co/T24f08wL #diabetes #dblog #socpharm #dsma
EileenOBrien:
#SocPharm RT @JoPeKim don't think they'd need to have sophisticated knowledge abt MOAs but should understand what trial means to pts
@JoPeKim:
@friedah03: we could start by requiring all trials posted to patient communities to undergo this review
JoPeKim:
@EileenOBrien @vivekaliraman: Maybe I am being naive, but I think all patient leaders are "qualified" - its why they are leaders #socpharm
PracticalWisdom:
Good Evening my Name is Lisa and I'm a member of #THewalkinggallery & Society for Participatory Medicine. #socpharm
vivekaliraman:
Patient groups most suitable to facilitate clinical trial recruitment @friedah03: @katherinekleon who kickstarted a study #socpharm
JoPeKim:
@vivekaliraman: don't think they would need to have deep knowledge about MOAs, but should understand what a trial means to pts. #socpharm
EileenOBrien:
@PracticalWisdom: welcome! Thanks for joining #socpharm. We're talking pr leaders curating clinical trial info
friedah03:
Totally agree! MT @JoPeKim: Maybe I am being naive, but I think all patient leaders are "qualified" - its why they are leaders #socpharm
JoPeKim:
patients need to be able to talk to a real person to vet trial oppty. patient leaders are the natural choice #socpharm
PracticalWisdom:
Thx Eileen. Just got back from #MEDX. Dr. @larrychu provided us with an amazing Conference w/Emphasis Patients. @EileenOBrien: #socpharm
vivekaliraman:
Without understanding MOA of a compound hard for anyone to provide useful clinical trial design info @EileenOBrien #SocPharm @JoPeKim
EileenOBrien:
@PracticalWisdom: I work in #raredisease space so we are all about the patients/caregivers! And these r some amazing pts. #SocPharm
JoPeKim:
@vivekaliraman: @EileenOBrien to be clear, not suggesting patient leaders contribute to study design #socpharm
PracticalWisdom:
Other #epatients in your Chat tonight. I"m seeing words like them, they. #S4PM #thewalkinggallery #MEDX G8 source 4 PT's #socpharm
JoPeKim:
shall we move onto EHRs? Loved the video posted by @PracticalWisdom #socpharm
JoPeKim:
while there is obvious value to accessing one's own #EHR, there is a big missed oppty upstream #socpharm
EileenOBrien:
@JoPeKim @PracticalWisdom: do you have a link of the video to share? #SocPharm
JoPeKim:
Firms like @explorys and @archimedesmodel can use #EHR to help patients peek into their future #socpharm
JoPeKim:
@EileenOBrien @PracticalWisdom http://t.co/mqBSUcQx #socpharm
crshorizon:
Interesting stats show docs less positive about EHR compared to last year. http://t.co/XAdrPces #socpharm
EileenOBrien:
@JoPeKim I bet this helps to change behavior #SocPharm
PracticalWisdom:
Thx (EHRs) Can Save Lives:http://t.co/5CVUcrnv MT @EileenOBrien: @JoPeKim @PracticalWisdom: ink of the video. #socpharm
EileenOBrien:
@PracticalWisdom: thanks, I'm a big fan of @ReginaHolliday #SocPharm
JoPeKim:
when my son was inutero, he had nuchal fold that was "out of range" - marker for Downs. My doc, opened a book (!) to look up risk #socpharm
JoPeKim:
...would have been better to access analytics based on millions of EHRs #socpharm
JoPeKim:
patients deserve access to #bigdata and #EHR. we consume it all the time when looking up the weather, why not for healthcare #socpharm
EileenOBrien:
Speaking of behavior change at Google ThinkHealth there was amazing co using video/animation to show how behavior impacts organs #SocPharm
vivekaliraman:
Fully Agreed MT @JoPeKim patients deserve access to #bigdata and #EHR.why not for healthcare #socpharm
EileenOBrien:
Time is almost up. Anyone have any closing thoughts? #socpharm
JoPeKim:
“I think the biggest innovations of the 21st century will be at the intersection of biology and technology.” Jobs #socpharm
EileenOBrien:
Thanks to those who joined in #SocPharm tonight and big thanks to @JoPeKim for moderating. Will post transcript tomorrow.
JoPeKim:
thanks for having me! #socpharm
Tweetchat Archive
- October 3, 2012
- September 5, 2012
- August 1, 2012
- July 11, 2012
- June 6, 2012
- May 2, 2012
- April 4, 2012
- March 7, 2012
- February 29, 2012
- February 22, 2012
- February 15, 2012
- February 8, 2012
- February 1, 2012
- January 25, 2012
- January 18, 2012
- January 11, 2012
- January 4, 2012
- December 7, 2011
- November 30, 2011
- November 16, 2011
- November 9, 2011
- November 2, 2011
- October 26, 2011
- October 19, 2011
- October 12, 2011
- October 5, 2011
- September 21, 2011
- September 14, 2011
- September 7, 2011
- August 31, 2011
- August 24, 2011
- August 17, 2011
- August 10, 2011
- July 27, 2011
- July 20, 2011
- July 13, 2011
- July 6, 2011
- June 29, 2011
- June 22, 2011
- June 15, 2011
- June 8, 2011
- June 1, 2011
- May 25, 2011
- May 18, 2011
- May 11, 2011
- May 4, 2011
- April 27, 2011
- April 20, 2011
- April 13, 2011
- April 6, 2011
- March 30, 2011
- March 23, 2011
- March 16, 2011
- March 9, 2011
- March 2, 2011
- February 23, 2011
- February 16, 2011
- February 9, 2011
- February 2, 2011
- January 26, 2011
- January 19, 2011
- January 12, 2011
- January 5, 2011
- December 15, 2010
- December 8, 2010
- December 1, 2010
- November 24, 2010
- November 17, 2010
- November 10, 2010
- November 3, 2010
- October 27, 2010
- October 20, 2010
- October 13, 2010
- October 6, 2010
- September 29, 2010
- September 22, 2010
- September 15, 2010
- September 8, 2010
- September 1, 2010
- August 25, 2010
- August 18, 2010
- August 11, 2010
- August 4, 2010
- July 28, 2010
- July 21, 2010
- July 14, 2010
- July 7, 2010
- June 30, 2010
- June 23, 2010
- June 16, 2010
- June 9, 2010
- June 2, 2010
- May 26, 2010
- May 19, 2010
- May 12, 2010
- May 5, 2010
- April 28, 2010
- April 21, 2010
- April 14, 2010

