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Adventures in eMarketing

#SocPharm on Twitter

See past #SocPharm transcripts

Blog Roll

Tag Cloud

#SocPharm Tweetchats

October 3, 2012

Tweetchat Archive

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Welcome to the #socpharm chat with @ from Shire as moderator. Please say hi!

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Please note that all tweets will be considered your personal views and not reflective of your employer or clients. #SocPharm

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hi everyone! welcome to the #socpharm tweet chat

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Hi All - Great to be here and looking forward to the conversation. Chuck #socpharm

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Hi all, very excited to join #socpharm chat with @

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Let's start by talking about research and how patient leaders like @ @ and @ might play a role #socpharm

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@, @ What topics are we looking forward to on tonite's #socpharm chat? # #clinicaltrials #hcsm #epharma

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Let's start by talking abt clinical research & how pt leaders like @ @ @ might play role #SocPharm

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Is anyone else having delays and issues with tweets not showing up in tweet stream? #SocPharm

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yes, it's slow tonight. maybe because of debates? #socpharm

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With increase in social media patient leaders are taking big role in #clinicaltrial & research. #SocPharm

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I bet u r right! RT @: yes, it's slow tonight. maybe because of debates? #socpharm

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Clinical Trials or Clinical/Medical "Research"? MT @: how patient leaders might play a role #socpharm"

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In #raredisease patient leaders are essential through entire process - from research through commercialization. #SocPharm

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allowing patient leaders to curate and comment on research opportunities in a formal way could be invaluable #socpharm

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@ Info/education from KOL/fellow patient especially valuable with uncertainty of a new therapy #socpharm

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@ interesting idea, how could something like that work? #SocPharm

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This can get political MT @: allowing patient leaders to curate & comment on research opportunities could be invaluable #socpharm"

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@ Patient leaders could perform a formal review of a protocol just as an ethics committee does #socpharm

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@ That sounds so sensible. What are the barriers you foresee? #socpharm

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How might patient leaders know about say JAK3 inhibitor role in Rheumatoid Arthritis? @ @ perform formal rev #socpharm

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@ We are seeing a lot of patient leaders in #clinicaltrials and research for #raredisease #socpharm

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A good example is @ who kickstarted a study with Mayo Clinic for her #raredisease SCAD http://t.co/8ulMc0op #socpharm

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@ who would decide which pt leaders would be qualified to do this? And per @: how to keep it like Switzerland? #SocPharm

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RT @: Program helps get diabetes under control | Richmond Times-Dispatch - http://t.co/T24f08wL #diabetes #dblog #socpharm #dsma

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#SocPharm RT @ don't think they'd need to have sophisticated knowledge abt MOAs but should understand what trial means to pts

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@: we could start by requiring all trials posted to patient communities to undergo this review

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@ @: Maybe I am being naive, but I think all patient leaders are "qualified" - its why they are leaders #socpharm

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Good Evening my Name is Lisa and I'm a member of #THewalkinggallery & Society for Participatory Medicine. #socpharm

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Patient groups most suitable to facilitate clinical trial recruitment @: @ who kickstarted a study #socpharm

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@: don't think they would need to have deep knowledge about MOAs, but should understand what a trial means to pts. #socpharm

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@: welcome! Thanks for joining #socpharm. We're talking pr leaders curating clinical trial info

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Totally agree! MT @: Maybe I am being naive, but I think all patient leaders are "qualified" - its why they are leaders #socpharm

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patients need to be able to talk to a real person to vet trial oppty. patient leaders are the natural choice #socpharm

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Thx Eileen. Just got back from #MEDX. Dr. @ provided us with an amazing Conference w/Emphasis Patients. @: #socpharm

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Without understanding MOA of a compound hard for anyone to provide useful clinical trial design info @ #SocPharm @

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@: I work in #raredisease space so we are all about the patients/caregivers! And these r some amazing pts. #SocPharm

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@: @ to be clear, not suggesting patient leaders contribute to study design #socpharm

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Other #epatients in your Chat tonight. I"m seeing words like them, they. #S4PM #thewalkinggallery #MEDX G8 source 4 PT's #socpharm

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shall we move onto EHRs? Loved the video posted by @ #socpharm

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while there is obvious value to accessing one's own #EHR, there is a big missed oppty upstream #socpharm

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@ @: do you have a link of the video to share? #SocPharm

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Firms like @ and @ can use #EHR to help patients peek into their future #socpharm

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@ @ http://t.co/mqBSUcQx #socpharm

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Interesting stats show docs less positive about EHR compared to last year. http://t.co/XAdrPces #socpharm

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@ I bet this helps to change behavior #SocPharm

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Thx (EHRs) Can Save Lives:http://t.co/5CVUcrnv MT @: @ @: ink of the video. #socpharm

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@: thanks, I'm a big fan of @ #SocPharm

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when my son was inutero, he had nuchal fold that was "out of range" - marker for Downs. My doc, opened a book (!) to look up risk #socpharm

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...would have been better to access analytics based on millions of EHRs #socpharm

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patients deserve access to #bigdata and #EHR. we consume it all the time when looking up the weather, why not for healthcare #socpharm

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Speaking of behavior change at Google ThinkHealth there was amazing co using video/animation to show how behavior impacts organs #SocPharm

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Fully Agreed MT @ patients deserve access to #bigdata and #EHR.why not for healthcare #socpharm

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Time is almost up. Anyone have any closing thoughts? #socpharm

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“I think the biggest innovations of the 21st century will be at the intersection of biology and technology.” Jobs #socpharm

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Thanks to those who joined in #SocPharm tonight and big thanks to @ for moderating. Will post transcript tomorrow.

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thanks for having me! #socpharm

Tweetchat Archive