Rare is Different

Wendy brings a unique perspective, as she is not only an industry leader but the mother of a daughter, Casey, with a rare disease 

When PharmaPhorum asked Siren Interactive to create a series of blog posts about rare diseases, we were thrilled to have the opportunity to share our thoughts. In the six-part series, titled “Rare is different,” we’ll show how the world of rare diseases is unlike other pharma markets, particularly in the knowledge and influence wielded by patients and caregivers.

The first post, “How empowered patients and caregivers are changing marketing for rare disorders,” was written by Siren’s founder & president, Wendy White. Wendy brings a unique perspective, as she is not only an industry leader but the mother of a daughter, Casey, with a rare disease. Read her story and please add your perspective in the comments.

Stay tuned for the next installment from Frieda Hernandez, who shares: “Why doctors are often stumped by rare disorders.”

About Eileen O'Brien

Eileen has more than 16 years of digital healthcare marketing experience. She is an opinion leader on social media and biopharma, and has been invited to speak at industry conferences and quoted in publications. She can be found on Twitter at @EileenOBrien and on Google+.

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