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Rett Syndrome Awareness Month

Posted by Katie Mihelich | 9:37 am on Wednesday October 10, 2012 | 3 Comments

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An estimated 1 in 10 Americans has a rare disease, so almost everyone has a family member or friend with a rare disease. For me, it’s my college roommate’s sister, Dana, and her nephew, Alex, who both have Rett syndrome. Rett syndrome is a progressive neurodevelopmental disease that resembles a combination of epilepsy, cerebral palsy, autism and Parkinson’s disease. Alex’s case is even rarer because this disease is almost exclusively found in girls.

You can see their story in the video below and support the family at saferideforalex.org. October is Rett Syndrome Awareness month. This infographic explains more about the disease and the research that is currently in progress to find a cure.

About Katie Mihelich

Honored by the Healthcare Businesswomen’s Association as a 2007 Rising Star, Katie heads the account services department. She acts as a trusted advisor for Siren’s clients and has developed strong relationships, some of which have lasted for more than ten years. Her strategic leadership and deep understanding of the pharmaceutical industry have played a key role in the impressive growth of the agency.

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  1. Eileen O'Brien
    October 10, 2012 at 2:40 pm

    It's Rett Syndrome Awareness Month. Learn more & see a video about 1 family: http://t.co/cv8PFRKW #raredisease #rettsyndrome

    Reply
  2. Viki Binding
    October 16, 2012 at 8:07 pm

    It's Rett Syndrome Awareness Month. Learn more & see a video about 1 family: http://t.co/cv8PFRKW #raredisease #rettsyndrome

    Reply
  3. Sandra Dee
    October 26, 2012 at 3:34 am

    Rett Syndrome Awareness Month | SIRENSONG http://t.co/M5ZFDUwT

    Reply

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