#SocPharm Tweetchat Transcript 7/6/2011

EileenOBrien:
Welcome to #socpharm biopharma marketing & sm tweetchat. Say hello!

EileenOBrien:
As always we assume your comments are your own and do not reflect your employer. #socpharm

CiaranSB:
Hi, Ciaran from Siren here. #socpharm

SusanBConnelly:
Hi, Susan here, first time joining for #socpharm usually focus on #Meded

EileenOBrien:
T1 @peterpitts blogs details on several pharm cos http://bit.ly/pXkTIM filing Citizens Petition against FDA for guidance.Thoughts? #socpharm

ellenhoenig:
hi- joining for a few minutes until my mom comes! @EileenOBrien: #socpharm

EileenOBrien:
@SusanBConnelly: @ellenhoenig: @CiaranSB: Thanks for saying hello. #socpharm

EileenOBrien:
T1 Anyone know anything about Citizen Petitions? Historical use by pharma? It’s all new to me. #socpharm

pharmaguy:
I’m here at #socpharm

ellenhoenig:
@EileenOBrien: @peterpitts #socpharm is citizens petition a stall tactic?

EileenOBrien:
T1 @pharmaguy: ‘s post gives his POV on pharma Citizen’s Petition http://bit.ly/qRs7hY #socpharm

MarksPhone:
Mark here want to see if I can add any value to the brain trust #socpharm

LinusReport:
#socpharm hello

EileenOBrien:
@MarksPhone: Hello Mark! So nice to see you #socpharm @LinusReport: Welcome!

EileenOBrien:
Per FDA http://1.usa.gov/pw4SEY they get about 200 Citizens Petitions per year & anyone can use them to try to influence FDA. #socpharm

EileenOBrien:
@pharmaguy: Do you know if this tactic has been used by pharma in the past to try to reach FDA? #socpharm

friedah03:
Hi all. Frieda Herenandez cheking in for #socpharm. Interested in all things #raredisease #epatient #caregiver… (cont) http://deck.ly/~bmnEF

pharmaguy:
I see a side effect of this petition delaying FDA SM guidance – what so you think? #socpharm

FDALawyers:
Darshan here. Looking forward to learning from the hive mind #socpharm

EileenOBrien:
@pharmaguy: It definitely complicates things more & throws something else into the mix that’s already political as it is. #socpharm

LinusReport:
#socpharm it’s hard to determine effectiveness. Based on our experience, pharma is more comfortable working with advocacy groups instead no?

heldincontempt:
Hi there — late but tuning in! #socpharm

EileenOBrien:
@FDALawyers: Welcome to #socpharm.Tonight’s topic will be of interest, citizen’s petition to FDA for guidance: http://bit.ly/rbLZzp

ellenhoenig:
@pharmaguy: I think u might be right-everything in context- ‘binding’ is a pretty tall order for FDA #socpharm

FDALawyers:
@pharmaguy: Unaware of a requirement that a guidance cannot later be modified into a reg. Could delay guidance. Unsure if it MUST. #socpharm

EileenOBrien:
@heldincontempt Heather — what do you think about this latest move by pharma to get guidance? http://bit.ly/pXkTIM #socpharm

FDALawyers:
Thx @EileenOBrien: Looking forward to hearing from all #socpharm

cadelarge:
@cadelarge: here from Novo Nordisk. #socpharm

pharmaguy:
You can find the petition here: http://ow.ly/5ynCh #socpharm

pharmaguy:
You can find the petition here: http://bit.ly/pw2krE #socpharm

Jeff_Greene:
#socpharm Evening – I’m mostly lurking tonite

heldincontempt@EileenOBrien:
I’m not sure — need to look at past citizen petitions and see what if any action was taken. Still pessimistic! #socpharm

pharmaguy:
@cadelarge: Hi Craig. Now I know why u said you dont expect SM gls in the foreseeable future! #socpharm

EileenOBrien:
@cadelarge: Craig, can you share anything about Novo Nordisk view? #socpharm

susanborst:
Interesting that this corporate move is considered a “citizen” petition. #socpharm

EileenOBrien:
@susanborst Yes interesting tool for these companies to leverage. #socpharm

cadelarge:
I am afraid I do not @eileenobrien. #socpharm

cadelarge:
@susanborst Corporations are citizens, or at least humans, yes? #socpharm

soulflsepulcher:
Hi, I blogged–Pharma cos filed Citizens Petition with FDA asking for communication policy http://tinyurl.com/3v5pygw #socpharm

FDALawyers:
@EileenOBrien: Often seen with generic/ brand battles #socpharm

EileenOBrien:
@FDALawyers: Ah, I’m unfamiliar with them. This is an education #socpharm

FDALawyers:
had to deal with one at previous job Hence my exposure #socpharm

EileenOBrien:
T2 Let’s talk abt how pharma should approach patients. Colleague @davidjakubiak: gave 5 tips: http://bit.ly/js6Cg2 Agree? #socpharm

pharmaguy:
An important part of this petition is desire of pharma to argue economic benefits of drugs to payors as “scientific exchange” #socpharm

soulflsepulcher:
stephany-citizen blogger (lol) mom,caregiver,advocate.i asked @TonyJewell why AZ wasnt in Petition, last i saw he was ‘checking’ #socpharm

friedah03:
I would say no but Citizens United ruling says yes RT @cadelarge: : @susanborst: Corporations are citizens, or at least humans, yes? #socpharm

FDALawyers:
i like the new approach – entity and environment not just drug based. #socpharm

MarksPhone:
The five points listed R std mkt and mkt research points. What they r doing is brand centric not problem centric adult learning #socpharm

EileenOBrien:
@MarksPhone: Expand on what you mean by “problem centric adult learning” please Mark. #socpharm

MarksPhone:
if we understand the problems patients want to solve (ie needs assessment) we can do better at connecting on a hihger level #socpharm

ellenhoenig:
@EileenOBrien: @davidjakubiak: #socpharm I agree w being transparent but not sure i agree w not being empathetic.

pharmaguy:
@cadelarge: Corps are meta-human – sometimes lacking human values like integrity & compassion, esp when goal is profits, IMHO. #socpharm

FDALawyers:
dont know how far they have executed so far #socpharm

EileenOBrien:
@MarksPhone: But what if you want to reach out to patients to learn what problems they want help to solve? #socpharm

MarksPhone:
Knowledge is durable. It’s retained longer, has a higher functionality, and a greater value. (A true brand relationship) #socpharm

LinusReport:
@MarksPhone: what’s stopping this problem-centric approach? #socpharm

MarksPhone:
You do a needs assessment there are techniques in gaining that insight at a very high level #socpharm

SusanBConnelly:
When looking at adult edu you 1st have to establish a need which is usually based on a gap #socpharm

ellenhoenig:
RT @marksphone if we understand the problems patients want to solve (ie needs assessment) we can do better at connecting #socpharm

SusanBConnelly:
Market research and need assessment aren’t always too far apart when looking for problems #socpharm

MarksPhone:
@SusanBConnelly: yes but that gap can be measured by problems they know they have or dont perceive #socpharm

gunterwessels:
Never been to this chat, but let’s rock #socpharm

MarksPhone:
@SusanBConnelly: I agree but they do not see the world in the same way one is looking at product the other the person: different #socpharm

SusanBConnelly:
@MarksPhone: there can be many causes for a gap and edu isn’t always the way to close it #socpharm

gunterwessels:
What about the behavior/ pharma interaction isn’t that the point? #socpharm

gunterwessels:
Brands mediate learning, esp. in adults #socpharm

SusanBConnelly:
@MarksPhone: totally agree both are looking at the same world through different lenses. Just trying to point out the parallels #socpharm

MarksPhone:
@SusanBConnelly: its not solving problems with edu but using brand benefits, if they work, does. It is not edu but knowledge #socpharm

MarksPhone:
Helping customers “gain knowledge” in relationship to your brand is more effective than simply imposing brand messages. #socpharm

Murfomurf:
@EileenOBrien: Butting in from Oz: I don’t think Pharma should approach patients! #socpharm

davidjakubiak:
@ellenhoenig: The issue is being genuine in your empathy, and even if you walk in another ones shoes they won’t fit the same #socpharm

davidjakubiak:
Sorry all just checked into a hotel. #socpharm

gunterwessels:
YES #socpharm RT @MarksPhone: : Helping customers “gain knowledge” in relationship to your brand is more effecti… (cont) http://deck.ly/~nI4SV

hjluks:
RT @MarksPhone: : Helping customers “gain knowledge” in relationship to your brand is more effective than simply imposing brand messages. #socpharm

EileenOBrien:
@Murfomurf: Welcome! Why shouldn’t pharma approach patients who are blogging or public about their disease? #socpharm

MarksPhone:
Re-fram brand communications within the context of the problem that the physician or patient is focused on solving #socpharm

davidjakubiak:
@Murfomurf: Even if intentions are good.. ie developing relevant programmes? (spelling to show Oz some love) #socpharm

FDALawyers:
@EileenOBrien: @Murfomurf: Is it a little like ambulance chasing if not done right? #socpharm

EileenOBrien:
@FDALawyers: It has to be done right, but if it’s with the correct intent it can be valuable. Especially w/ #raredisease patients. #socpharm

MarksPhone:
I gotta bounce. Thank you all for the sharing let me know if I can help #socpharm

EileenOBrien:
@MarksPhone: Thanks for sharing your insights Mark! #socpharm

davidjakubiak:
@FDALawyers: right, which is why it MUST be done right! #socpharm

FDALawyers:
@davidjakubiak: IMHO difficult to do since diff people have diff definitions of “right” #socpharm

Murfomurf:
@EileenOBrien: I firmly believe Pharma are commercial entities. If people have symps, advice shd come only from hlth profl. #socpharm

EileenOBrien:
Last topic: @boehringer launches Ashoka’s Changemakers health challenge: http://bit.ly/paZi8r What do you think of this? #socpharm

EileenOBrien:
@Murfomurf: But for rare patients who are often misdiagnosed for years, pharma can provide online info to help. #socpharm

Murfomurf:
@davidjakubiak: A local family pharmacist can give advice based on healthcare training. Not a Pharma company person. My opinion. #socpharm

hjluks:
RT @MarksPhone: : Re-fram brand communications within the context of the problem that the physician or patient is focused on solving #socpharm

EileenOBrien:
@Murfomurf: That’s the confusion — it’s not advice, just pure disease awareness information. #socpharm

davidjakubiak:
@FDALawyers: Can we can agree that there are patient needs, gaps in potential resources and Pharma stands in a position to do good #socpharm

Murfomurf:
@EileenOBrien: I’ll stay radical. I don’t want disease info from a treatment seller! #socpharm But I can’t stop them giving it.

FDALawyers:
@davidjakubiak: Agreed #socpharm

FDALawyers:
@Murfomurf: @davidjakubiak: Does it matter that local pharmacist gets his info primarily from pharma? #socpharm

Murfomurf:
@EileenOBrien: Rare disorder people are rare. It’s not worth the public hlth hazard. #socpharm

davidjakubiak:
: @Murfomurf we are talking apples and oranges. A local chemist cant create a global support program or awareness campaign #socpharm

Wisdom_4_U2:
RT @MarksPhone: : Re-fram brand communications within the context of the problem that the physician or patient is focused on solving #socpharm

SusanBConnelly:
As an RPh beg to differ RT @FDALawyers: @Murfomurf: @davidjakubiak: Does it matter that local RPh gets info primarily from pharma? #socpharm

davidjakubiak:
Life saving treatments are not bad things! #socpharm

EileenOBrien:
@Murfomurf: We’ll have to agree to disagree! #socpharm

Murfomurf:
@davidjakubiak: I don’t want local pharmacists to be global. They are aware of local problems, eg. need for flu shots! #socpharm

EileenOBrien:
@boehringer‘s been doing interesting things n the social space, this seems to be another: http://bit.ly/paZi8r #socpharm

egculbertson:
RT @EileenOBrien: : Last topic: @boehringer launches Ashoka’s Changemakers health challenge: http://bit.ly/paZi8r What do you think of this? #socpharm

EileenOBrien:
What makes it interesting. RT @Murfomurf: : @EileenOBrien: I am used to disagreeing about Pharma! Someone hhas to do it! #socpharm

FDALawyers:
@SusanBConnelly: Susan, am an Rph too. But, a lot of info comes direct/indirect from pharma (PI/Dinner even sponsored studies) #socpharm

LinusReport:
@Murfomurf: but what does any of that have to do with disease awareness? Donno anyone who goes to pharmacist to Learn abt disease. #socpharm

Murfomurf:
@FDALawyers: @davidjakubiak: In Aust. pharmacists are not so educated by Pharma, so could be an exception. #socpharm

davidjakubiak:
@Murfomurf: Apples and oranges. Can a local pharmacist match Pharma expertise in a rare, chronic, lifethreatening condition? #socpharm

Murfomurf:
@LinusReport: Right- ppl in our community don’t normally associate Pharma with info on personal health. Symps = medical. #socpharm

FDALawyers:
CEs paid by pharma, drug reps, etc #socpharm

friedah03:
@LinusReport: Agree abt going to pharmacist for disease awareness #socpharm

Murfomurf:
@davidjakubiak: If hlth system missed a rare, life threatening condition & pt isn’t in an ambulance, Pharma is also too late. #socpharm

susanborst:
Speed innovation challenges being used across many industries.Could bring some good big ideas that could potentially be executed. #socpharm

SusanBConnelly:
@FDALawyers: my husband actually practices as a local RPh and aside from PIs most info is independent and 0 dinner mtgs for RPh #socpharm

Murfomurf:
@jonalchin- Quick, hop onto #socpharm! Need you!

davidjakubiak:
Loved the chat tonight all! Disagreement is critical to advancing thought! #socpharm

EileenOBrien:
Thanks for another lively #socpharm tweetchat. Hope to see you next week, let me know if you have topic ideas.

SusanBConnelly:
CEs are independent! Pharma can fund but thats it! RT @FDALawyers: CEs paid by pharma, drug reps, etc #socpharm

Murfomurf:
@SusanBConnelly: Sorry- missed Tweet. Would you say you use all your knowledge, not just Pharma input? #socpharm

richmeyer:
Which has a better ROI for new Rx’s the web or TV ?: http://t.co/WvwQ0kA #Pharma #socpharm #health #fdasm #hcsm

FDALawyers:
me2 practice very routinely. Uptodate/micromedex etc all reference pharma spon. studies. Not saying bias, but related2 pharma #socpharm

EileenOBrien:
I’ll share the link when I post the #socpharm transcript in next few days. PP is calling me

FDALawyers:
i worked at riteaid, independents, multiple hospitals etc. relation seemed thru. Influence who knows. #socpharm

Jeff_Greene:
#socpharm Thx @eileenobrien for Boehringer link, crowdsourcing for pharma. Reminds me of OpenIDEO.

SusanBConnelly:
@Murfomurf: of course. All HCPs get some info from Pharma but most look to independent sources to round out conclusions. #socpharm

Murfomurf:
@EileenOBrien: I’m full of wild ideas about this and that- will try to keep Tweeps on their toes! #socpharm

Murfomurf:
@SusanBConnelly: I know – you don’t just grab a spiel from a drug rep and shove it under someone’s nose! #socpharm

SusanBConnelly:
@FDALawyers: I don’t know if I would classify primary research as “info from Pharma” even if it’s a sponsored study #socpharm reviews maybe

Jeff_Greene:
Wow just saw this – @richmeyer trashes the Dosies http://cot.ag/pKXzJJ #socpharm

FDALawyers:
@SusanBConnelly: depends on the definition of “from” #socpharm

SusanBConnelly:
@FDALawyers: yes we can go back and forth about scope. I work with independent edu so you can see my view #socpharm

FDALawyers:
@SusanBConnelly: Def. and I dont disagree. Just saying it depends on viewpoint. Some more pessimistic/ paranoid than others. #socpharm

ellenhoenig:
@davidjakubiak: true but demonstrating that u r trying to understand can go a long way- obviously empathy must be genuine #socpharm

dolcetibby:
RT @ellenhoenig: : RT @marksphone if we understand the problems patients want to solve (ie needs assessment) we can do better at connecting #socpharm

dolcetibby:
RT @gunterwessels: : Brands mediate learning, esp. in adults #socpharm

dolcetibby:
RT @davidjakubiak: : @ellenhoenig: The issue is being genuine in your empathy, and even if you walk in another ones shoes they won’t fit the same #socpharm

dolcetibby:
RT @FDALawyers: : @EileenOBrien: @Murfomurf: Is it a little like ambulance chasing if not done right? #socpharm

dolcetibby:
@EileenOBrien: @FDALawyers: – with the correct intent it can be valuable. Especially w/ #raredisease patients. #socpharm” #agreed

dolcetibby:
RT @davidjakubiak: : @FDALawyers: right, which is why it MUST be done right! #socpharm

dolcetibby:
RT @FDALawyers: : @davidjakubiak: IMHO difficult to do since diff people have diff definitions of “right” #socpharm

Murfomurf:
@FDALawyers: It does bear resemblance to ambulance chasing sometimes IMHO #socpharm Much happier with non-trial research pharm.

dolcetibby:
“@EileenOBrien: : @Murfomurf: But for rare patients who are often misdiagnosed for yrs, can provide online info to help. #socpharm” #agreed

dolcetibby:
RT @EileenOBrien: : @Murfomurf: That’s the confusion — it’s not advice, just pure disease awareness information. #socpharm

dolcetibby:
“@davidjakubiak: : @FDALawyers: Can we agree there r patient needs, gaps n resources & pharma stands in position to do good #socpharm” #agreed

dolcetibby:
“@Murfomurf: : @EileenOBrien: Rare disorder people are rare. It’s not worth the public hlth hazard. #socpharm” #bioethics

dolcetibby:
“@friedah03: : @LinusReport: Agree abt going to pharmacist for disease awareness #socpharm” #nevertalkrarediseasewourpharmacistnevereverever

dolcetibby:
“@davidjakubiak: : Loved the chat tonight all! Disagreement is critical to advancing thought! #socpharm” #agreed

Murfomurf:
@dolcetibby Yep- I’m a public health advocate, ie. a bit of a lefty. #bioethics comes B4 #socpharm in taking care of health/disease.